How is it that just two weeks ago we were doing so incredibly well and I thought I'd be able to go the whole month of March with no co-pays or dr. appointments!? I tell you, when it rains it pours with this deal.
Today I had a dermatologist appt. to have the skin checked around the November incision. It has looked continually irritated, red, itchy, scabs, and although it looks healed, it has been somewhat of a "skin mess" all along. Get this: I'm allergic to the internal sutures that were used in the November surgery and the "skin mess" is the bodies way of trying to get them out! The skin dr. said I should have been in there long ago, but I kept thinking it would get better. Patience is not a virtue sometimes! So, we're starting on this high powered cream routine tonight, to try and get it to improve. The sutures deep down will dissolve eventually, but she said that it could take 6-12 months .... great. I'm supposed to call Dallas and find out the material used, so as not to use it in the future. Have to go back in 2-3 weeks to have it checked again and see if it is improving any - it is almost like an internal infection under the incision area. Now I've been to 4-6 ortho appointments since November easily and none of them ever said anything about an allergic reaction .... they all asked me why it looked so bad, but no one suggested that I seek out a dermatologist. Just goes to show that you have to be persistent, & somewhat pushy to get progress in the medical field!
I sent an e-mail to the STL surgeon today asking him what progress he made in referring me to a neurologist .... didn't hear back from him. I'll call his office tomorrow and will get him on the phone, if I don't hear something back ..... he will be out of town the remainder of the week, so it is Wed. or nothing.
I may call Dallas tomorrow & see about flying down there one day next week to have him look at it and get his opinion in person. At the moment there isn't anyone truly "monitoring the situation" intensely - there are 3 doctors involved, but no one is really leading anything.
Long day today .... will see what tomorrow brings, but my patience is waning.
Love & hugs,
Jenny
3 comments:
Jenny, Makes you wonder who is the doctor and who is the patient when they ask your how your foot is doing can they not see or feel. I know you are trying to remain patient, however at this stage of the game everyone has a breaking point, sounds like you have reached it. I cannot say I blame you. Hopefully you will get some kind of an answer tomorrow from someone or at least a phone conversation with one of the doctors. Hang in there. Praying for you and thinking of you. Love, Ted,Carol,Teddy
Praying that today will be the day that you hear something back TOO... The internal suture reaction is not that unusual...we see it not too uncommonly post surgically w/i a month or so. I AM surprised that the surgeons you have seen didn't recognize it themselves (i.e.: that it took a dermatologist to figure it out) b/c it's not too off-the-beaten-path to see. Grrrr. I'll try to write you later e-mail maybe on my lunch hr, OK? Just wanted to post QUICK that it was AM and I was thinking of you (yeah...again). L Jo
OK...me (again). Just tucked Jr. Jr. into bed & am waiting for Jr. Sr. to get home from Cubbies w/ Daddy so I can whisk him into the tub and into bed, too. Thinking of you and praying. L Jo
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